Dylan Update and an itty bitty Scare!

Ok, I have started typing this blog about 10 times now. I don't really know where to start. So I will start with my emotions. In the last 48 hours I have felt nervous, excited, relieved, scared, shocked, mad, really mad, tired, picked on, and relieved again.

And here's why:
Yesterday we were at Primary Children's at 7 in the am for Dylan's one year MRI scan of his tumor. He had to have an IV placed, blood drawn, fluids given, and then meds were given and he was off to la-la land in a matter of minutes. Paul and I did our usual: go down to the cafeteria and try to eat breakfast, which for me always, and I mean ALWAYS includes a glazed donut with chocolate frosting. {a woman must make those babies because they are loaded with sugar and with just one bite, my nerves are put at ease....kidding. sort of. but not really} We wander the halls, get on the community {germ infested} computers on the 3rd floor to check our emails, and then head back down to the 1st floor and into the recovery room. While Dylan was sedated an audiogram was performed...he passed with flying colors! And then it was time to wake him up. He was out cold when I asked him if he wanted a popsicle. His response: a sleepy nod up and down and a crooked-still-sedated-smile. It was to die for. He loved his red popsicle. Paul recorded him trying to wake up. Hilarious and sad all at the same time. Then we headed up to the 4th floor to the oncology clinic to see the ever loving Dr. Bruggars. Have we told you how much we love her? We do. He had to have more blood drawn for a few more labs and then the doc was in. The results: "progressive mildly decreasing conspicuity....." in mom and dad terms: "Dylan's brain tumor is possibly shrinking!!!!" No joke. Can you believe it? That blasted thing is still shrinking. We are so so excited! Then....

Today I got a phone call from the ever loving Dr. Bruggars. She never calls me. Ever. I was a little shocked to hear her voice. I was really shocked when she mentioned words like: more labs, platelets, hemoglobin, neutrophil count, low numbers, concerned, bad cells take over space of good cells, can you come up tomorrow?, potential appointment in oncology and the rapid treatment unit, bone marrow test, leukemia....and on and on and on. What? not again, please oh, please oh, please not again. I used my brave voice and finished the conversation {while sitting in the hell-mart parking lot, with my kids in the backseat}. Wiped my tears away. And called Paul.
We had to go to the hospital to have more blood drawn and then we played the waiting game. Dr. Bruggers called me again. This time with great news: all is well!! She suspects human error in yesterdays labs. Thank you. Thank you. Thank you. Thank you.

Paul and I were ready to buckle up for another roller coaster ride. Our minds wandered to the worst case scenario. We've been through the hell. Dylan has been through hell. We know it all too well and so we let our minds go there. To be prepared, both mentally and physically. The battle of Leukemia would be more intense than what we were up against with his brain tumor. So we let our minds go "there" and we made arrangements, in our heads and out loud together, about how we were going to deal with this.

Thankfully, Dylan does NOT have Leukemia, or anything else going on in his little body. Thankfully, Dr. Bruggars was on top of his labs and called me to get things figured out asap. Thankfully, the blood draw went smoothly today--Dylan didn't even cry! Thankfully, we are all home, all five of us. Together. Safe. Without any scary things going on. Thankfully.